Cure Duchenne is who we support. Watch the Cure Duchenne Heroes inspirational video.
We want to thank you for 12 amazing years of support and community turnout. For the 13th Hike for Hope we are asking all of you to continue that support by doing something as a family or with friends for all of those who can’t. We will not be holding an event as in the past, instead we are hoping you all will be the event by doing your own hike or other activity. On Saturday March 25th., Bob and Carole Sharp will be hiking Buttermilk 5 times in honor of the 5 years it will take for CRISPR Cas9, the only potential cure of muscular dystrophy, to be tested in human trial.. We invite you to join us online in honor of those with Muscular Dystrophy.
We are hiking to raise funds for a cure for MD. So we are looking forward to seeing the results of the 2017 Online Hike for Hope Fundraiser. Please consider a donation towards ending MD.
Best to all,
The Sharp Family
Who are we?
We are parents of a son who has an incurable disease called Becker Muscular Dystrophy. Our mission is a grassroots effort to bring focus and research to DMD, Duchenne Muscular Dystrophy, the leading killer of young boys. Our son Ian has Becker Muscular Dystrophy which is a less severe form, but just as frightening. One in every 3500 boys are born with DMD. Every day two boys die of DMD. This is a genetic disorder, approximately 60% of the mutations are hereditary, but because it is random, most families don’t know of its existence. 40% of the time it occurs because of a spontaneous mutation at birth. Simply put this is a muscle wasting disease. The prognosis has been the same for years: Wheelchair by 9 – 12 and life expectancy between late teens and early twenties. IT CAN HAPPEN IN ANY FAMILY. We have learned that DMD is an “orphan” disease and that pharmaceutical companies do not invest in bringing cures to market because the number of end users does not make it profitable enough. So we have taken matters into our own hands and embarked on a path to affect change…to raise the funds needed to cure DMD and BMD in our son’s lifetime. 100% of the funds raised goes to cutting edge research. We hope that one day, no longer will young boys have to cry because they can’t keep up with their friends because their legs cramp, no longer will they need wheelchairs or have to go to a camp to feel and be “normal” and most importantly no longer die before they have a chance to really live! Our vision is to draw awareness to the fact that there are far too many incurable diseases killing our children, let’s put a stop to this now!!! With your help we can take a step for hope,take a step to cure, take a step because we can.
You should know that every penny of your gift goes directly to the research lab and no funds are to be diverted for paying indirect costs or institutional overhead. That means 100% of the money raised goes to research. All expenses are donated. No payrolls. No profits. Your dollars go directly to the lab to help find a cure.
Hike for Hope is operating under the HIKE FOR HOPE FOUNDATION INC
936 W Francis St., Aspen, CO. 81611
Tax-exempt 501 (c)(3)
Tax ID 20-3596738