What is Dystrophin? w/ Craig McDonald, MD

Cure Rare Disease w/ Rich Horgan

Hike for Hope will honoring “Terry Horgan Day” – May 19, 2024

Honoring Medical Pioneer Terry Horgan.

On Sunday, May 19, 2024, Terry Horgan would have celebrated his 29th birthday.

Terry was a pioneer and a fighter who wanted to help find a cure for his awful disease. The Horgan family lived a life based on little Terry battling a disease that just takes and takes and takes. Until now there have been no treatments, no cures. Terry’s older brother Rich, who started CRD to cure his brother, has devoted his life to changing the path for those who suffer from Muscular Dystrophy.

With CRD there will be an end to this cruel disease.

What the Horgan Family had to endure this week last year is unimaginable but they did it for an ever so important reason and with complete expectance of what the choice may bring. What it bought was beyond devastating and terrible but with it, science, necessary science.

Choices are few when you battle Muscular Dystrophy, something Terry was all too aware of..

Please join our family in honoring the remarkable and selfless Terry Horgan and his dedicated family, because of them we have great hope.

Thank you, Terry Horgan, you are our forever hero and you will always be remembered.

“A great soul serves everyone all the time. A great soul never dies. It brings us together again and again” Maya Angelou

Terry Horgan is a great soul and is always in our hearts.

With endless gratitude and love,
The Sharp Family

(BEED) Becker Education and Engagement Day

SAVE THE DATE BEED returns Saturday, September 28, 2024

Dear Friends

If you choose to make a donation 100% of your donation will go directly to support CRISPR Technology and the work being done with the Cure Rare Disease team.

How will your “MD” help us to continue to MAKE a DIFFERENCE? Please share what special event you have on our Facebook page.

A HUGE thank you to those of you who have already so generously donated. Your continued support of our mission means so much to so many!

No words can adequately express how grateful and thankful we are for such a thoughtful, supportive, and amazing community!

With endless thanks and gratitude,
Carole, Bob, Ian, and Ty Sharp

GREAT STRIDES!!! THANK YOU FOR YOUR SUPPORT! We are so grateful for your donations, registration fees, sponsorships, and the volunteering of your valuable time toward our efforts. Your generosity has and will go directly to the most promising Muscular Dystrophy specific research, which gives our boys hope for a better tomorrow.

BECAUSE OF YOU we are much closer to a true treatment for Muscular Dystrophy. New studies and MD news can be found on our Research page.

THERE IS MORE RESEARCH that needs to be done and funds that are needed to fuel cutting-edge studies of Muscular Dystrophy.

Who are we?

We are parents of a son who has an incurable disease called Becker Muscular Dystrophy. Our mission is a grassroots effort to bring focus and research to DMD, Duchenne Muscular Dystrophy, the leading killer of young boys. Our son Ian has Becker Muscular Dystrophy which is a less severe form, but just as frightening. One in every 3500 boys is born with DMD. Every day two boys die of DMD. This is a genetic disorder, approximately 60% of the mutations are hereditary, but because it is random, most families don’t know of its existence. 40% of the time it occurs because of a spontaneous mutation at birth. Simply put this is a muscle-wasting disease. The prognosis has been the same for years: Wheelchair by 9 – 12 and life expectancy between late teens and early twenties. IT CAN HAPPEN IN ANY FAMILY. We have learned that DMD is an “orphan” disease and that pharmaceutical companies do not invest in bringing cures to market because the number of end-users does not make it profitable enough. So we have taken matters into our own hands and embarked on a path to affect change…to raise the funds needed to cure DMD and BMD in our son’s lifetime. 100% of the funds raised go to cutting-edge research. We hope that one day, no longer will young boys have to cry because they can’t keep up with their friends because their legs cramp, no longer will they need wheelchairs or have to go to a camp to feel and be “normal” and most importantly no longer die before they have a chance to really live! Our vision is to draw awareness to the fact that there are far too many incurable diseases killing our children, let’s put a stop to this now!!! With your help, we can take a step for hope, take a step to cure, take a step because we can.

You should know that every penny of your gift goes directly to the research lab and no funds are to be diverted for paying indirect costs or institutional overhead. That means 100% of the money raised goes to research. All expenses are donated. No payrolls. No profits. Your dollars go directly to the lab to help find a cure.

Hike for Hope is operating under the HIKE FOR HOPE FOUNDATION INC
936 W Francis St., Aspen, CO. 81611
Tel: 970-925-6137,
Tax-exempt 501 (c)(3)
charitable organization.
Tax ID 20-3596738